Search Criteria: Cancer Studies;
Assess the Science of Daily Experiences and Quitting Smoking
Tobacco is related to at least 20 different cancers. Most attempts to quit smoking fail. Technology has been developed to better understand how real-time experiences related to a persons identity and emotions impact efforts to quit smoking. Research is needed to assess the support people need to stop smoking. The information we learn may aid future patients. (IRB#: IRB_00157042)
Assess the Science to Stop Smoking
Tobacco is related to at least 20 different cancers. Most attempts to quit smoking fail. Technology has been developed to better understand how a persons emotions impact people in their efforts. Research is needed to assess the support people need to stop smoking. The information we learn may aid future patients. (IRB#: IRB_00104596)
Cancer Stories Shaping Outcomes Can Your Cellphone Be a Compassionate Listener?
This study is looking at cancer patient voices, actions and body language using computer measurements of behavior via video-recorded answers to questions on your smartphone device using a free app. This research is important because it may help us discover and understand unknown factors that impact cancer treatment outcomes. (IRB#: IRB_00143135)
Digital Storytelling Study for Young Cancer Survivors
The purpose of this study is to understand the experiences of people ages 15 to 39 years old who face cancer. The study wants to learn what supports improve the quality of life when going through cancer and after the treatment is completed. Being in the study requires completing two 5-minute surveys and participating in digital storytelling by being in a private online chat group for 12 weeks. Each week participants will respond to 2-3 questions about health related to the quality of life. Participants will be paid for being in the study. (IRB#: IRB_00172717)
FIREFLY-1
The description and purpose of the study drug is to research the use of an investigational product labeled NA- IP (DAY 101- formerly TAK-580/MLN2480) to treat Low-Grade Glioma and other advanced solid tumors in pediatric and age-of-majority participants (IRB#: IRB_00138633)
Genetic Testing in Rural Communities
A genetic test can help people get personalized healthcare. Some genetic tests can also identify people who may have a child with a severe disease so that people can make family planning decisions that are in line with their values. Some studies suggest that there are inequalities in genetic testing between people who live in rural areas and people who live in urban areas. Residents in rural counties in Idaho, Montana, Nevada, Utah, and Wyoming and healthcare providers who see patients in those counties will participate in interviews. People who participate will have considered disease risk or carrier genetic testing. The study wants to learn about the genetic testing experiences of people who have and have not had disease risk or carrier genetic testing. The study wants to better understand what makes it easier and harder for people in rural counties to get genetic testing. This will help identify strategies for people who live in rural areas can get the same genetic testing as people who live in urban areas. (IRB#: IRB_00176898)
HCI-Total Cancer Care Study
This study is a partnership between participants, health care providers, and researchers. Our aim is to better understand what causes cancer and to find better ways to prevent, detect, and treat cancer more successfully while also supporting your family. This study is an opportunity to contribute samples and information that will be used to accelerate cancer research and improve patient care. Participants like you are vital to our success. The study also offers access to a broader set of clinical trials and new treatments through our partnership with other leading cancer centers nationally. There is no cost to be in this study. No matter what you decide, it won't change the relationship with your health care providers to affect the quality of your care. (IRB#: IRB_00089989)
Improving Health Insurance Literacy for Young Adult Cancer Survivors
Health insurance can be difficult for young adults with cancer to find answers to questions about their health insurance plan. This studys purpose is to help young adult cancer survivors understand their health insurance and costs. People in this study are required to complete 3 online surveys over 12 months. Each survey will take about 20 minutes. Participants will be paid for completing each activity. Some participants will receive a digital informational booklet about health insurance while other participants will receive this booklet and also complete 4 health insurance support sessions with a navigator. Sessions will be completed on Zoom and last about 45 minutes. (IRB#: IRB_00164028)
Long-Term Follow-Up of Patients Who Received Lentiviral-Based CAR-T Cell Therapy
People with specific types of cancer such as leukemia and lymphomas may receive Lentiviral-Based CAR-T Cell Therapy. This is to help improve the symptoms of this disease. Research is needed to learn the long-term safety and effectiveness of the therapy. The information we gain may provide further guidance to patients, doctors, and researchers. (IRB#: IRB_00079262)
Needs Assessment of Young Adult Rural Cancer Caregivers
Young adult rural cancer caregivers experience unique challenges. These include mental health, financial hardship, and unmet social needs. This study wants to better understand the needs and challenges of young adult rural cancer caregivers. The information will help develop and test interventions to improve young adult rural cancer caregiver experiences. Being in the study requires completing a 15 to 20-minute online survey. Participants will also complete a 30 to 45-minute online video interview. Participants will be paid for being in the study. (IRB#: IRB_00180551)
Researching Biopsies of People with Aggressive Cutaneous Lymphoma
Aggressive cutaneous lymphoma is a rare and life-threatening cancer with limited treatment options. Participants will not receive treatment/medication for the condition in this study. This study will observe participants with aggressive lymphomas and their previously collected biopsies to learn more about lymphomas and their response to different treatments. Being in the study requires participants to share medical records and previous biopsies of skin tissue to be tested, shared with other researchers, and stored for future research. (IRB#: IRB_00143860)
Testing the Treatment of Donor Cell Transplants for Children and Young Adults with Severe Myeloid Leukemia
This study is testing the treatment with Natural Killer cells from a donor to a patient, which may lower the chance that a blood disease severe myeloid leukemia will come back after a haploidentical (half-matched) transplant (moving cells from a donor to a patient). The study wants to see if the treatment will help people with severe myeloid leukemia. People in the study will receive Natural Killer cells from a central line placed in the body, most likely the chest. A central line is a tube that allows medications, medical tests, and transfusions to occur. Transfusion is a way to move blood from a donor to a patient. Being in the study requires attending in-person study visits at a clinic for about 2 years. Medical tests will be done to track the health of participants. (IRB#: IRB_00152764)
Tobacco and Alcohol Use Among People with Low Income
The study wants to learn the reason people engage in certain behaviors. The study team wants to know how certain factors such as emotions, and social and psychological factors on discrimination impact the use of tobacco and alcohol among people who are low income. Being in the study will last about 9 years requiring 2 visits from the participants home. One online virtual visit at the beginning of the study and one phone call at the end of the study. Participation also requires downloading an application on the participants cellphone and answering up to 8 short phone surveys on the smartphone per day for 7 days in a row. The surveys will ask the participant about feelings, experiences, emotions, smoking, and drinking behaviors. (IRB#: IRB_00170612)
Tobacco cessation among tobacco and marijuana co-users
Tobacco is related to cancer risk. Most attempts to quit are unsuccessful. Many people who use tobacco also use marijuana. Using the two substances together may impact whether tobacco quit attempts are successful. This study will provide information about factors that influence the use of tobacco and marijuana. This information we learn may aid future patients who would like to quit using tobacco. (IRB#: IRB_00168877)
Ultraviolet Ray Prevention for Children
Melanoma is the 6th most common type of skin cancer in the United States. The just-in-time intervention (JITAI) application (app) is a tool used on a cell phone. The tool can help children and adults know how much time in ultraviolet rays (UVL) from the sun. Research is needed to learn what children and adults think about using the JITAI app. We hope to reduce the time children spend in UVR, so sunburns occur less. (IRB#: IRB_00121617)