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Volunteering in research
is a gift to your family,
community and the world.

Research needs volunteers from many backgrounds who are interested and willing to help shape the future.

Together we can make difference.

Taking part is a choice only you can make. Your participation is voluntary and you can stop at any time!

Deciding to take part in research is a very personal choice. No one will be upset if you choose not to participate, and you will still receive care from your care.

You are also free to change your mind even after you start the study. Take your time to consider if taking part is right for you.

Research is done for many reasons, including to help a study team learn important and/or new things. When you volunteer you are helping scientists answer specific questions. This may include ways to improve treatment options and/or quality of life.

Knowing what the study is trying to learn may help you decide if taking part is right for you.

Each study is unique. What you will be asked to do will help the study team learn more about the topic they are studying.  You may be asked to:

  • Fill out questionnaires.
  • Answer questions about your medical history.
  • Give a blood sample

The study team will be able to tell you how many visits you will be asked to attend. They will also be able to tell you how long each visit may take.

The study team can answer questions about study procedures and cost. They will also be able to tell you if there is compensation available for your time and travel.

  • If you have questions about your rights you can call the Institutional Review Board (IRB) at the University of Utah.
  • You may also contact the Office of Research Participant Advocacy.

Before you agree to take part in any study, the study team will explain what the risks and benefits are.

Some studies may not provide a direct benefit to you but may help future generations. Don’t be afraid to ask questions and talk it over with family and friends. Make sure the study is a good fit for you.

The study team will have access to your research records. This may include researchers outside of the university or the drug company who is sponsoring the study.

The University of Utah Institutional Review Board (IRB) will have access to your records. The IRB oversees research studies to ensure your rights and safety are protected while you are involved in research.

In addition, these may also have access:

  • The FDA (Food and Drug Administration)
  • Other groups if needed. The study team will inform you if this applies.

You do not have to participate in research. There may be other options available to you. Be sure to ask what the alternatives are. Remember participating in research is voluntary and you can stop at any time.

Last Updated: 6/8/23