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Study Details

Genetic Testing in Rural Communities

(IRB#: IRB_00176898)

A genetic test can help people get personalized healthcare. Some genetic tests can also identify people who may have a child with a severe disease so that people can make family planning decisions that are in line with their values. Some studies suggest that there are inequalities in genetic testing between people who live in rural areas and people who live in urban areas. Residents in rural counties in Idaho, Montana, Nevada, Utah, and Wyoming and healthcare providers who see patients in those counties will participate in interviews. People who participate will have considered disease risk or carrier genetic testing. The study wants to learn about the genetic testing experiences of people who have and have not had disease risk or carrier genetic testing. The study wants to better understand what makes it easier and harder for people in rural counties to get genetic testing. This will help identify strategies for people who live in rural areas can get the same genetic testing as people who live in urban areas.

I AM INTERESTED

  • All genders
  • Over 18 years old
  • Healthy Volunteers
  •   From Home
  • Paid

Who can participate?

 Gender: All genders

  Age: Over 18 years old

  Volunteers: Healthy Volunteers

   Location: From Home

Inclusion Criteria

  • Ages 18 to 75 years old
  • If a rural resident, must live in a rural county in Idaho, Montana, Nevada, Utah, or Wyoming AND must have discussed genetic testing with a healthcare provider.
  • If a clinician, must provide healthcare at a clinic located in a rural county in Idaho, Montana, Nevada, Utah, or Wyoming AND must have discussed genetic testing with a patient.

Exclusion Criteria

  • Do not speak English.
  • Neither live nor provide healthcare in a rural county in Idaho, Montana, Nevada, Utah, or Wyoming

Will I be paid for my time?

Yes

For more information contact:

Anne Madeo

ruralgeneticstesting@utah.edu

  385-495-7077

IRB#: IRB_00176898

PI: Anne Madeo

Department: POPULATION HEALTH SCIENCES

Approval Date: 2024-05-01 14:28:00

Study Categories: Breast Cancer Studies, Cancer Studies, Colon Cancer Studies, Heart Studies, Lung Cancer Studies, Prostate Cancer Studies

Specialties: Genetic Counselor

Last Updated: 6/8/23