Study Details

Genetic Testing in Rural Communities

(IRB#: IRB_00176898)

A genetic test can help people get personalized healthcare (disease risk genetic testing). These genetic tests can also identify people who may have a child with a severe disease so that people can make family planning decisions that are in line with their values (carrier genetic testing). Some studies say there are inequalities in genetic testing between people who live in rural areas and people who live in urban areas. People from rural communities in Idaho, Montana, Nevada, Utah, and Wyoming will participate in interviews. People who participate will have considered getting disease risk or carrier genetic testing. The study wants to learn about the genetic testing experiences of people who have and have not had disease risk or carrier genetic testing. The study wants to better understand what makes it easier and harder for people in rural communities to have genetic testing. This will help identify strategies for people who live in rural areas can get the same genetic testing as people who live in urban areas.

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