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Study Details

Building Transition Readiness Skills for Adolescents and Young Adults with Congenital Heart Disease

(IRB#: IRB_00156291)

Congenital heart disease (CHD) is one of the most common birth defects with most major effects diagnosed in infancy. Because there is no cure for CHD it is a lifelong chronic illness. Research is needed to understand the needs of people with CHD as they transition from child to adulthood. This information will improve the care and quality of life for people with CHD.


  • All genders
  • Over 7 years old
  • Volunteers with special conditions
  •   From Home
  • Paid

Who can participate?

 Gender: All genders

  Age: Over 7 years old

  Volunteers: Volunteers with special conditions

   Location: From Home

Inclusion Criteria

  • Ages 15 and older
  • Diagnosed with congenital heart disease
  • Able to speak, read and write English
  • Ability to participate in a focus group discussion or interview
  • Parent(s) or guardian(s) of participant ages 15-21

Exclusion Criteria

  • Significant cognitive or visual impairment that prevents participation

Will I be paid for my time?


For more information contact:

Rebecca Delaney


IRB#: IRB_00156291

PI: Rebecca Delaney


Approval Date: 2022-10-13 17:06:00

Study Categories: Heart Studies, Mental Health and Well-being Studies

Last Updated: 6/8/23