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Study Details

Improving Congenital Heart Disease Care for Adolescents and Young Adults

(IRB#: IRB_00149991)

Congenital Heart disease (CHD) is one of the most common birth defects with most major effects diagnosed in infancy. Because there is no cure for CHD it is a lifelong chronic illness. Research is needed to understand the needs of people with CHD as they transition from child to adulthood. This information will improve the care and quality of life for people with CHD.


  • All genders
  • Over 7 years old
  • Volunteers with special conditions
  •   From Home
  • Paid

Who can participate?

 Gender: All genders

  Age: Over 7 years old

  Volunteers: Volunteers with special conditions

   Location: From Home

Inclusion Criteria

  • Ages 15 and older
  • Diagnosed with CHD
  • Able to speak, read and write English
  • Ability to participate in an interview and complete a survey
  • Parent(s) or guardian(s) of participant ages 15-21

Exclusion Criteria

  • Significant cognitive or visual impairment that prevents participation
  • Enrolled and currently participating in another clinical study
  • Pregnant or planning to become pregnant during the study
  • Moderate to severe respiratory disease
  • Moderate to severe heart failure

Will I be paid for my time?


For more information contact:

Rebecca Delaney


IRB#: IRB_00149991

PI: Rebecca Delaney


Approval Date: 2022-06-15 06:00:00

Study Categories: Heart Studies, Mental Health and Well-being Studies

Specialties: Pediatric Cardiology

Last Updated: 6/8/23