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Study Details

Improving Care for Children Who Have Kidney Transplants Due to Kidney Disease

(IRB#: IRB_00138538)

Kidney disease is when blood in the body is not filtered creating extra fluid that can cause serious health issues such as heart disease or stroke. The study wants to see how to improve care for children who have kidney transplants (a surgery that removes an unhealthy kidney and replaces it with a healthy kidney). Improving Renal Outcomes Collaborative is a network of patients, families, caregivers, and researchers that provide data to find better ways to care for children with kidney transplants. Participants in the study will share health data to be collected into a secure database to develop new methods that improve care for children with kidney transplants.


  • All genders
  • All Ages
  • Volunteers with special conditions
  •   From Home
  • Unpaid

Who can participate?

 Gender: All genders

  Age: All Ages

  Volunteers: Volunteers with special conditions

   Location: From Home

Inclusion Criteria

  • Ages birth to 25 years old
  • Kidney transplant or can have a transplant within 12 months with a doctor who is part of the Improving Renal Outcomes Collaborative study
  • Kidney transplant who has had a doctors visit in the past 18 months
  • Kidney transplant failed and waiting for a 2nd transplant
  • Kidney transplant with a doctors visit in the last 18 months

Exclusion Criteria

  • Failed kidney transplant not scheduled for or expected to receive another transplant in 12 months

Will I be paid for my time?


For more information contact:

Leandra Bitterfield


IRB#: IRB_00138538

PI: Caitlin Peterson


Approval Date: 2021-01-14 21:40:00

Specialties: Pediatric Nephrology

Last Updated: 6/8/23