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Study Details

Advance Care Planning in Dementia

(IRB#: IRB_00132042)

Advanced care planning is important for adults, but maybe even more for people with memory loss. This disease can leave end-of-life decision-making up to the care partner. Often, the care partner does not know how to make the best decisions in the situation. Research is needed to improve and evaluate a website called LEAD Intervention (Life-Planning in Early Alzheimers and Dementia). LEAD is designed to help persons with memory loss have conversations, document, and share their end-of-life decisions with a care partner, extended family, and healthcare providers.


  • All genders
  • Over 18 years old
  • Healthy Volunteers
  •   From Home
  • Paid

Who can participate?

 Gender: All genders

  Age: Over 18 years old

  Volunteers: Healthy Volunteers

   Location: From Home

Inclusion Criteria

  • The person with memory loss needs to have noticed changes in their memory or thinking skills or have a diagnosis of mild cognitive impairment or mild Alzheimer's disease or another form of dementia from a healthcare provider.
  • The care partner needs to be 18 years or older and English-speaking.
  • The person will memory loss needs to be age 50 or older and English-speaking.

Will I be paid for my time?


For more information contact:

Nancy Aruscavage


IRB#: IRB_00132042

PI: Kara Dassel


Approval Date: 2020-05-19 20:41:00

Study Categories: Brain Health Studies, Mental Health and Well-being Studies

Specialties: Geriatrics, Internal Medicine, General, Neurology

Last Updated: 6/8/23