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Study Details

CARRA Registry for People with Pediatric Rheumatic Diseases

(IRB#: IRB_00083072)

Rheumatic diseases affect joints and can cause chronic severe pain. This study will collect information that includes cognitive and behavioral testing to learn how effective medication is in treating people with pediatric rheumatic diseases. The study wants to see how thinking abilities change over time in people with this disease. People in the study will complete a computer-based survey once a year for 5 years. The survey tests cognitive and behavioral abilities and lasts about one hour. Participants will be paid for each survey completed.

I AM INTERESTED

  • All genders
  • All Ages
  • Volunteers with special conditions
  •   In Person
  • Paid

Who can participate?

 Gender: All genders

  Age: All Ages

  Volunteers: Volunteers with special conditions

   Location: In Person

Inclusion Criteria

  • Ages 21 years and younger beginning study participation
  • Onset of rheumatic disease before age 16 years old for juvenile idiopathic arthritis (JIA) and onset before age 19 years old for all other rheumatic diseases

Will I be paid for my time?

Yes

For more information contact:

Suzy Richins

suzy.richins@hsc.utah.edu

  8015855067

IRB#: IRB_00083072

PI: Christi Inman

Department: PEDIATRICS

Approval Date: 2015-10-03 05:47:00

Specialties: Rheumatology

Last Updated: 6/8/23