Study Details
Characterization of Individuals with Leukodystrophy
(IRB#: IRB_00019596)
Leukodystrophy is a disease that affects the white matter. The white matter is the area of the brain through which messages are sent. Leukodystrophies can have many causes, some known and some yet to be known. There are no specific tests to help establish the cause or diagnosis. This study will collect information on people with leukodystrophies. Being in the study requires people to share their health information. This will be analyzed to better understand leukodystrophies and to improve ways to diagnose the health condition.
- All genders
- All Ages
- Volunteers with special conditions
- From Home
- Unpaid
Who can participate?
Gender: All genders
Age: All Ages
Volunteers: Volunteers with special conditions
Location: From Home
Inclusion Criteria
- All ages
- Any person with an inherited white matter disease
Exclusion Criteria
- White matter disease or lesion related to an injury, other disease, or health condition
Will I be paid for my time?
No
IRB#: IRB_00019596
PI: Josh Bonkowsky
Department: PEDIATRICS
Approval Date: 2007-01-19 14:30:00
Study Categories: Brain Health Studies
Specialties: Neurology, Pediatric Neurology
I am Interested