Study Details
Tracking Health in People with Pulmonary Fibrosis and Other Lung Diseases
(IRB#: IRB_00195821)
This study is a registry for people with Idiopathic Pulmonary Fibrosis and Interstitial Lung Disease. These conditions cause scarring and lung damage. A registry study does not test a treatment. Instead, it collects health information and blood samples over time to help researchers learn more about these conditions and support future research. Participating in this study involves completing surveys, interviews, and blood draws every 6 months over a 6-year period. The study will also collect information from medical records. The goal of the registry is to better understand Idiopathic Pulmonary Fibrosis and Interstitial Lung Disease to improve treatment and care.
- All genders
- Over 18 years old
- Volunteers with special conditions
- In Person
- Paid
Who can participate?
Gender: All genders
Age: Over 18 years old
Volunteers: Volunteers with special conditions
Location: In Person
Inclusion Criteria
- Ages 21 years and older
- New diagnosis of Idiopathic Pulmonary Fibrosis within 12 months of participation or non-Idiopathic Pulmonary Fibrosis Interstitial Lung Disease at any time
- Able to attend in person at the study clinic
Exclusion Criteria
- Cancer treated or untreated, other than skin or early-stage prostate cancer, within 5 years of participation
- Currently listed for lung transplantation at the time of participation
- Currently in another clinical trial at the time of participation
- Previously participated in the study registry
Will I be paid for my time?
Yes
IRB#: IRB_00195821
PI: Mary Beth Scholand
Department: PULMONARY
Approval Date: 2025-12-17 07:00:00
Specialties: Pulmonary
I am Interested